seabiscuit and cfs
A few quotes in my mailbox about Laura Hillenbrand, the author of Seabiscuit.
For those who don’t know, I have CFS and Fibromyalgia. So Hillenbrand’s story is amazing to me.
USATODAY.com - 'Seabiscuit' author puts a face on chronic fatigue syndrome
Her candid views have cast a much-needed spotlight on CFS, which afflicts an estimated 800,000 Americans, says Jon Sterling, chairman of the Chronic Fatigue and Immune Dysfunction Syndrome Association of America. Hits to the group’s Web site soared by 50% after Hillenbrand starting giving interviews, he says
"It’s an inspiring story," CFS lobbyist Tom Sheridan told the crowd. "The jockey is inspiring. The horse is inspiring. But really the most inspiring story is the author."
Seabiscuit jockeys for CFS recognition
CFS is not considered a progressive illness; its symptoms are often most severe in the first year or two, although they can persist for many years. Most patients partially recover, some fully recover, while others recover and relapse. In Hillenbrand’s case, that meant being bedridden for years at some stages and coping with a case of severe vertigo by writing with her eyes closed, or with a computer rigged up at shoulder height, a box of breakfast cereal close at hand so she wouldn’t waste energy by walking to the kitchen to eat.
There’s still a bunch of unread mail in my CFIDS folder, so you may see more quotes like this still. 
Comments
I think of you every time I hear her interviewed, in the good way - she did so much, in her own way, and you’re doing that too
Posted by: Donna | August 4, 2003 06:42 PM
woohoo! you’ve renovated! and it’s lookin' good.
Posted by: lili | August 4, 2003 08:28 PM