cfs stuff
So I lied. I started on some things I needed to do instead of going to bed.
I’m supposed to have gotten my doctor a list of people who specialize in treatment for CFS patients. I found most of this back in July, but didn’t do anything with it. Now I remember why. Its so discouraging to look at searches for "Vancouver WA" "Chronic Fatigue" or any other similar searches. There are so many people (not doctors, just search result people) making fun of it, that its not real or that people who say they have it are faking it.
Maybe that’s why I don’t really want to go back to see a doctor. I am trying to deal with the aspects of this sickness, and to be told AGAIN that there’s nothing that can be done, or there’s no point in diagnosing me since there’s no cure, or whatever my doctor has to tell me this time... that’s more discouraging.
But, I know, I need to go and find out if there’s anything else I could be doing to make myself more comfortable in dealing with these symptoms. :sigh: My dr. appt. is Nov 6. Let’s pray that I don’t start stressing about it more until that day.
My thought on that is... I can’t control what’s happening to my body, and therefore, its not my fault that I’m wasting her time. But I feel like I am nonetheless. And wasting E’s time because he has to take me. From everything I’ve read, there is NO easy solution, so I’m wasting everyone’s time. Blech.
On that cheery note, I’ll try the sleep thing again.
Just so I don’t loose these (and maybe so I can help others searching for this info):
Co-Cure list
(Portland, OR - no Vancouver, WA doctors found)
Kip Kemple, MD
2311 NW Northrup
Portland, Oregon 97210
Tel: (503) 223-1840
(FMS. "Rheumatolagist, Excellent Doc. Very Knowledgable re: FM/MPS and all rheumatolagical problems.")
Erin Lommen, N.D.
4444 SW Corbett Ave.
Portland OR 97201
Tel: (503) 224-4003
("I’m crazy about my doctor, a naturopath in Portland Oregon. She’s thorough and caring and very respectful. She’s up-to-date and leery of fad treatments. I can highly recommend her").
Portland CFS Support Group list
suggested by CFIDS support group - first one is local, 2nd two are highly recommended.
Jill Stansbury, ND
Battle Ground, WA
360-687-2799
Brian Trafficante, MD
Portland, OR
503-221-0161
Kim Webster, MD
Portland, OR
503-973-5545
Comments
Have you checked into integrative medecine? I was going to suggest it if you have problems with the mainstream medical community. Try finding a doctor that uses techniques (or can reffer you to someone) such as acupuncuture and theraputic massage.
I’ve been going to an acupuncturist for over a month (5 visits) and i can honestly say it’s helped. I’ve gotten almost 75% of my energy back and i’m feeling better than i’ve felt in years.
This is just a suggestion. I really hope you find something that works for you
Posted by: Laure | October 28, 2002 04:59 AM
It will still make you feel better if you get an actual diagnosis. Don’t worry about anyone else, but yourself!
Posted by: sandy | October 28, 2002 06:16 AM
Yes, what Sandy said - *you* are your most important project, Kristine, and those people criticizing CFS are doing it because they’re ignorant. Whatever is happening to you, *something* is happening, and you deserve an answer, wherever you find it. Hee. Whenever you need some extra feistyness, just give me a jingle - I obviously have some to spare
Posted by: Donna | October 28, 2002 07:29 AM
You’re not wasting anyone’s time sweetie. It’s THEIR job to try and help you. Unfortunately, I think some doctor’s have the attitude that if it’s not something they can easily diagnose, they tend to brush you off. Are you seeing a specialist for CFS?
Posted by: K. | October 28, 2002 11:47 AM
how can i feel better my ex broke my heart an im so upset brokenhearted wat shud i do get bc to me
plz
Posted by: lia | April 28, 2004 12:58 PM