kadyellebee

Although not knowing what’s wrong with you might be disappointing, you’re no disappointment! Keep faith that your doctors will find a diagnosis soon so you can start dealing with your health.

Instead of swimming maybe find a water aeorbics class at the local Y. It really is non-stress on joints and good exercise, without wearing you out as the water is the buoyancy. Worth a try. I’m sorry you don’t have an answer yet.

kristine, i am so frustrated for you! grrrrrrr >:-| i am so not one to take any diagnosis lying down, and i would not be nearly as patient as you have been with getting in to see people.

i don’t think the endocrinologist is a bad idea - not only do they deal with things like diabetes, but they also deal with metabolism, reproduction, growth and development. so maybe someone like that can interpret your blood work differently.

also, the sleep apnea thing... never occured to me! but its a good thought. i have several friends (and an ex-husband) with sleep apnea, and they’ve all been dramatically helped by CPAP machines (helps you get enough oxygen when you sleep). you’d need a sleep study to be properly diagnosed, so find a sleep research center near you and get scheduled ;)

i’m sorry to go on so long here, but you know, i just want you to feel better - it sucks to be tired all the time, and you’re too young to feel so old

i feel so bad for you, and i wish i could be there to give you a great big hug.

as for the exercise, i read about a girl with fibromyalgia that started working out for 2 minutes, 3 days a week and worked her way up to 30 min over 3 months - so if nothing else, you might just try something like that.

i’m sure that money and insurance may be an issue, but maybe you could start looking into a holistic doctor, who may be more understanding, and might work with you on some of the symptoms, even if not diagnosed.

*sigh* i’ll be praying for you. (((hugs)))

You are not a a disappointment to anybody Kristine. Sometimes there are things in life that just can’t be explained. I’m not a doctor, but from everything you’ve written about your condition it does sound quite similar to CFS. It might be worth it to look into other doctors with experience in that area or at the very least get a second opinion from a different doctor.

And I think it’s good that you’re questioning their diagnosis because doctors do miss things sometimes. My own doctor once diagnosed me with acid reflux, but as it turned out what I really needed was to have my gallbladder removed, which she completely missed. So it does pay to be on your toes where your own health is concerned.

But I wish and pray nothing but good health for you. And who knows, maybe the swimming will help since the water supports your body and is a very relaxing form of exercise. {{{hugs}}}}

i love you kristine. you are not a dissapointment... if anybody’s a disappointment, it’s the doctors, for not being able to tell you what’s wrong. i hate it when i get the runaround from doctors. drives me nuts.

but like shawn said, maybe it would be a good idea to go see the endocrinologist. i hope that you can get an appointment ASAP, because i really hate "seeing you" like this. you deserve so much more than you’re getting. *hugs*

I know it must be hard, Kristine, but I urge you to be patient with yourself as this unfolds - I know few people with CFS, but each one went through a long and torturous process of learning about the disease and getting an accurate diagnosis. Just because you are in the middle rather than closer to the end doesn’t make your symptoms any less real, and I think you’re perfectly justified in telling people "I can’t do X today because I don’t feel well." That said, I urge you to try swimming if you can find a class you like locally - I take a water exercise class twice a week, and it’s nice low-impact exercise for people like me with joint problems - I’ve noticed less pain and increased strength over time. You don’t have to go in for water aerobics if you can find something more low-key. I can sympathize and empathize with the feeling that you must be a disappointment because you think everyone expects more - all I can say is what I remind myself of: those who love me will understand and appreciate me for who I am. I feel like I have to repeat that a lot. Good luck - I’ll think good thoughts for you!

Kristine ::hugs:: I just hope you find out what’s wrong with you as soon as possible. If at all possible, get as many different professional opinions as you can. My mom has had something very similar to what you describe for the past 10 years or so and NO doctor has been able to tell her why.

Hang in there.

kristine, you are such an amazingly talented person and it makes me very sad to read that you’ve been so sick. i have some good cfs links. just email me if you want them. good luck.

{{{{{{{ Kristine }}}}}}}

I’m sorry it didn’t go well sweetie... I don’t know what the insurance situation is, but if it’s possible, just keep going to doctors until someone can tell you what’s wrong...

It’s exhausting, and I know sometimes it seems hopeless, but in the end you are worth it!

Oh Kristine. I wish I could somehow help you. This must be so frustrating. Don’t give up. Do everything you can, keep going to appointments until someone can tell you what’s happening. DON’T GIVE UP.
And you’re no disappointment to anyone. Ever. Think God makes junk? Nah, He doesn’t. I will keep you in my prayers, and hope you find the answers that must be out there. And I’m sending you great big giant *e-hugs* right now!

Kristine - there’s not much more I can say than *hugs* I’m so sorry you have to go through this and I hope you can keep confidence and hope up, along with support from E, to get you through this. We went through nearly the same things with my mom, who was diagnosed with CFS quite a while a back. (I think back in the mid/late 80’s) More than one of her doctors thought she was a hypochondriac (sp?) but eventually found someone who saw it for what it was. I hope with all my heart you find a doctor like that. I’ve got my fingers crossed for you. Have lots of fun in CA and try to keep your mind on that. ;)

Kristine,
I completely understand your frustration with your Dr.’s. I have been ill since April 2002. Don’t give up. I recently saw a Rhematologist and he recommended water aerobic. I explained to him how weak I am and he recommended wearing a life jacket in the pool. Too bad, I just don’t have the energy. I have been to at least seven other Dr.’s and had numerous blood tests. In Oct. 2002, my internist diagnosed CFS, but he wasn’t encouraging.
Keep smiling, God Loves You! I am also doing research on CFS and would appreciate any info that might be helpful. You are not being LAZY - CFS is very diffiuclt to deal with. I have been turned down for disability at a job where I worked for over 25 years. So I have hired an attorney to appeal their decision. I urge you to keep going to Doctor’s until you find one that will listen to you. GOD BLESS YOU
Yvonne

Kristine,
I completely understand your frustration with your Dr.’s. I have been ill since April 2002. Don’t give up. I recently saw a Rhematologist and he recommended water aerobic. I explained to him how weak I am and he recommended wearing a life jacket in the pool. Too bad, I just don’t have the energy. I have been to at least seven other Dr.’s and had numerous blood tests. In Oct. 2002, my internist diagnosed CFS, but he wasn’t encouraging.
Keep smiling, God Loves You! I am also doing research on CFS and would appreciate any info that might be helpful. You are not being LAZY - CFS is very diffiuclt to deal with. I have been turned down for disability at a job where I worked for over 25 years. So I have hired an attorney to appeal their decision. I urge you to keep going to Doctor’s until you find one that will listen to you. GOD BLESS YOU
Yvonne